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Title: End-of-life care in intensive care units - family routines and environmental factors
Authors: Fridh, Isabell
Forsberg, Anna
Bergbom, Ingegerd
Department: Other
Issue Date: 2007
Journal Title: Scandinavian Journal of Caring Sciences
ISSN: 1471-6712
Volume: 21
Issue: 1
Pages: 25-31
Publisher: Wiley-Blackwell Publishing Ltd.
Media type: text
Publication type: article, peer reviewed scientific
Subject Category: Subject categories::Social Sciences Interdisciplinary::Nursing
Strategic Research Area: Integrated nursing science
Abstract: The purpose of this study was to describe family care routines and to explore environmental factors when patients die in Swedish intensive care units (ICUs). The main research questions were: what are the physical environmental circumstances and facilities when caring for patients in end-of-life and are there any routines or guidelines when caring for dying patients and their families? A questionnaire was sent to 79 eligible Swedish ICUs in December 2003, addressed to the unit managers. The response rate was 94% (n = 74 units). The findings show that, despite recommendations highlighting the importance of privacy for dying ICU patients and their families, only 11% of the respondents stated that patients never died in shared rooms in their ICU. If a patient dies in a shared room, nurses strive to ensure a dignified goodbye by moving the body to an empty room or to one specially designated for this purpose. The majority (76%) of the units had waiting rooms within the ICU. The study also revealed that there is a need for improvements in the follow-up routines for bereaved families. Many units reported (51%) that they often or almost always offer a follow-up visit, although in most cases the bereaved family had to initiate the follow-up by contacting the ICU. Guidelines in the area of end-of-life care were used by 25% of the ICUs. Further research is necessary to acquire a deeper knowledge of the circumstances under which patients die in ICUs and what impact the ICU environment has on bereaved families.
DOI: 10.1111/j.1471-6712.2007.00470.x
Sustainable development: -
Appears in Collections:Artiklar och rapporter / Articles and reports (EX)

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